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What is Hunter Syndrome? The hope for a cure: Gene therapy
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Stories What is Hunter Syndrome? The hope for a cure: Gene therapy About Us Our Team News from Project Alive Contact Donate

Hunter Syndrome Community Conference 2021

 

Videos

Information

  • Regenxbio Fact Sheet
  • JCR Fact Sheet
  • Denali Fact Sheet
  • Homology Fact Sheet
  • Avrobio Fact Sheet
  • UCSF In Utero ERT
  • Takeda Hunter Syndrome Info

Resources:

  • National MPS Society: A Guide to Understanding MPS II
  • Urbatsch Law Firm – Family/Financial Planning
  • Siblings with a Mission
  • Angel Aid Cares

 

 Project Alive Family Resources

  • Family Mentorship Form
  • 1st Year Checklist for Newly Diagnosed Families
  • Annual Health Checklist for Neuronopathic MPS II Families
  • Annual Health Checklist for Attenuated MPS II Families
  • MPS II Medical Log Excel Template
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Our contact information

313-31-ALIVE (313-312-5483)

press@projectalive.org
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