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Stories What is Hunter Syndrome? The hope for a cure: Gene therapy About Us Our Team News from Project Alive Contact Donate

Project Alive in the Press

Action for Aidan donates $200,000 to Project Alive

Project Alive Welcomes New Executive Director

Project Alive Welcomes Five New Board Members

Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive

Project Alive's new president, Dr. Kim Stephens.

Dr. Kim Stephens becomes second Project Alive president

Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research

Safety studies nearing completion in gene therapy drug trial

Project Alive president recognized with honors for work in rare disease research advocacy

Project Alive receives $250,000 gift from Mark Cuban Foundation in honor of Hunter Syndrome advocate Simon Ibell

Cyclists complete four state, 1200-mile journey

Project Alive raises nearly $300,000 with #15byMay15; continues push to fund a cure

Project Alive thanks donors to its #15byMay15 in longest Facebook post on record

Florida Gulf Coast University students donated $10,000 to Project Alive on Giving Tuesday.

Project Alive nets $144,078 on Giving Tuesday

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