Project Alive in the Press

Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research

Safety studies nearing completion in gene therapy drug trial

Dr. Kim Stephens becomes second Project Alive president

Project Alive president recognized with honors for work in rare disease research advocacy

Project Alive receives $250,000 gift from Mark Cuban Foundation in honor of Hunter Syndrome advocate Simon Ibell

Project Alive raises nearly $300,000 with #15byMay15; continues push to fund a cure

Project Alive thanks donors to its #15byMay15 in longest Facebook post on record

Project Alive nets $144,078 on Giving Tuesday

Cyclists complete four state, 1200-mile journey