Melissa Hogan, J.D.
Melissa is an original founder of Project Alive, as well as a lawyer, author, and speaker focused on issues important to the rare disease community. After her son Case was diagnosed with Hunter Syndrome in 2009, she left her corporate career to focus on advancing awareness, education, and research in the Hunter Syndrome community. She began writing a blog that would grow to be read in over 100 countries, and speaking on topics such as advocacy, clinical trials, and social media in rare disease. Melissa is considered one of the foremost lay experts on Hunter Syndrome in the world. She also serves as a Patient Representative for the Food and Drug Administration, an External Advisory Board member for the Mayo Clinic Social Media Network, and as a board member for several rare disease organizations. She has been published in various medical journals on issues ranging from neurocognitive testing, expanded access to medicines, to immune tolerance regimens for enzyme replacement therapies, as well as on Rare Disease Report, The Huffington Post, and The Mighty. She currently writes at MelissaHogan.me. Melissa holds a J.D. with honors and an emphasis in health law from the University of Pittsburgh School of Law, and a B.A. with honors in Communications and Political Science from Georgetown College. Prior to her son’s life-changing diagnosis, her law career included serving as a clerk on the U.S. Court of Appeals for the Sixth Circuit, a corporate and securities attorney, a professor of legal writing and health care regulatory law, and a management consultant to law firms on global strategy. She enjoys writing music and playing guitar, and is also the author of forthcoming books on pediatric medical trauma as well as patient advocacy. Melissa is married to Chris Hogan, a prominent speaker on leadership and finance and author of Retired Inspired (Ramsey Press 2016), and lives outside Nashville, Tennessee. They have three sons, including Case, and enjoy attending their football and basketball games.