Project Alive's Hunter Syndrome Casino Night will be a fun evening to raise money for community programs and research.
Project Alive exists to find and fund a cure for Hunter Syndrome (also known as Mucopolysaccharidosis or MPS II) through research and advocacy. Project Alive is a powerful voice for children and adults with Hunter Syndrome, bringing together families and advocates with researchers, industry, and regulators. The organization funds promising curative research, assists researchers and industry with designing research studies for our community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. Through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter Syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.
501(c)(3) Tax ID number: 46-4617970
This event is open to the public.
What will the event include?
Dinner catered by Hilton Hotel
Casino games including blackjack, poker, roulette, craps, and bingo
Prizes as your winnings
Cash bar for main event, open bar for VIP cocktail hour
Limited slots for childcare will be available at an hourly, per child rate for the general public. Details will be sent out via email to all ticketholders. MPS families will receive free childcare, please reach out to us if your child has any type of MPS.
For Hunter syndrome families:
Please visit the link below to register for the Family Fair and view the promo code for Casino Night. Please contact us if you do not have the family promo code. You will receive discounted tickets with a free VIP upgrade. Childcare will also be provided at no cost. You will also receive a free ticket to the Hunter Syndrome Family Fair that will occur prior to this event.
Family Fair Registration
Use the following link to book a room at a discounted rate by September 27, 2023.
Book your stay here
We hope you will join us and meet some of our amazing families that are impacted by Hunter syndrome. Your support will help us save lives.