The Heart of the Cause

Our Stories

Hunter syndrome is a devastating disease with no cure. For most children diagnosed with Hunter syndrome, they will never make it into adulthood. These stories follow a few families in their fight for a cure. Project Alive was built by parents facing these same challenges and our mission is to cure Hunter syndrome. 

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.