The Heart of the Cause

Our Stories

Hunter syndrome is a devastating disease with no cure. For most children diagnosed with Hunter syndrome, they will never make it into adulthood. These stories follow a few families in their fight for a cure. Project Alive was built by parents facing these same challenges and our mission is to cure Hunter syndrome. 

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Building a Future Together

Hunter Syndrome Community Conference

March 13-15, 2026 | Costa Mesa, CA

 

 

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