The Heart of the Cause
Our Stories
Hunter syndrome is a devastating disease with no cure. For most children diagnosed with Hunter syndrome, they will never make it into adulthood. These stories follow a few families in their fight for a cure. Project Alive was built by parents facing these same challenges and our mission is to cure Hunter syndrome.

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Building a Future Together
Hunter Syndrome Community Conference
March 13-15, 2026 | Costa Mesa, CA