No events
A History of Hope
We host and participate in events to raise awareness, promote research, and fundraise to support our cause. Our conferences are a place to participate in panels, hear from speakers, make connections with other families, and enjoy live entertainment.
2025
Project Alive is excited to host a screening of The Zebra and the Bear on March 16th at 3 PM via Zoom. This powerful documentary highlights a mother’s relentless quest to secure a groundbreaking gene-therapy treatment for her daughter facing an ultra-rare disease. Following the screening, there will be a Q&A with the film's mother and creator, offering invaluable insights into the challenges and triumphs of advocating for rare disease research. We invite you to register and be part of this impactful conversation. Link to register: https://conta.cc/4irfmJl
In March of 2024, Project Alive held the fourth annual Hunter Syndrome Community Conference. This year’s conference brought new speakers and topics in which the community has shown interest. The yearly virtual conference continues to address the needs of the Hunter syndrome community.
