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Events and Conferences

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boy at doctors smiling with thumbs up
panel speaking to group of listeners

A History of Hope

Looking Back At Past Events

We host and participate in events to raise awareness, promote research, and fundraise to support our cause. Our conferences are a place to participate in panels, hear from speakers, make connections with other families, and enjoy live entertainment.

Past Conferences

Past Events

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First Aid, CPR, and Water Safety Webinar

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Journey into Adulthood

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Event Recap: 2024 Hunter Syndrome Community Conference

In March of 2024, Project Alive held the fourth annual Hunter Syndrome Community Conference. This year’s conference brought new speakers and topics in which the community has shown interest. The yearly virtual conference continues to address the needs of the Hunter syndrome community.

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Caregiver Community Chat

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Hunter Syndrome and Antibodies 101

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Storytelling Master Class and Workshop

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All Past Events

May 3, 2025 | Chapel Hill, NC

Cure Within Reach Gala

Join us for an unforgettable evening at the Cure Within Reach Gala, a premier event dedicated to advancing research, advocacy, and care for individuals affected by MPS. Hosted at the prestigious Carolina Club in Chapel Hill, NC, this special night will bring together supporters, advocates, and leading experts in the field to fuel hope and progress.

Together, we are bringing a cure within reach.

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