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Events and Conferences

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three women presenting to group
boy at doctors smiling with thumbs up
panel speaking to group of listeners

A History of Hope

Looking Back At Past Events

We host and participate in events to raise awareness, promote research, and fundraise to support our cause. Our conferences are a place to participate in panels, hear from speakers, make connections with other families, and enjoy live entertainment.

Past Conferences

Past Events

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Journey into Adulthood

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Event Recap: 2024 Hunter Syndrome Community Conference

In March of 2024, Project Alive held the fourth annual Hunter Syndrome Community Conference. This year’s conference brought new speakers and topics in which the community has shown interest. The yearly virtual conference continues to address the needs of the Hunter syndrome community.

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Caregiver Community Chat

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Hunter Syndrome and Antibodies 101

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Storytelling Master Class and Workshop

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Lemonade Stand Fundraiser

Join Project Alive in hosting your own lemonade stand this August!

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All Past Events

Year End Appeal

Building a Future Together

Project Alive envisions a world where every individual with Hunter syndrome has access to curative medicine. Help us make that dream come true. 

During this season of giving, give a child a chance to grow up.

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