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Events and Conferences

What's Ahead

Featured Conference

Upcoming Events

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Caregiver Community Chat

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A History of Hope

Looking Back At Past Events

We host and participate in events to raise awareness, promote research, and fundraise to support our cause. Our conferences are a place to participate in panels, hear from speakers, make connections with other families, and enjoy live entertainment.

Past Conferences

Past Events

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Journey into Adulthood

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Event Recap: 2024 Hunter Syndrome Community Conference

In March of 2024, Project Alive held the fourth annual Hunter Syndrome Community Conference. This year’s conference brought new speakers and topics in which the community has shown interest. The yearly virtual conference continues to address the needs of the Hunter syndrome community.

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Hunter Syndrome and Antibodies 101

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Storytelling Master Class and Workshop

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Lemonade Stand Fundraiser

Join Project Alive in hosting your own lemonade stand this August!

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Event Recap: 2023 Hunter Syndrome Community Conference

In March 2023, Project Alive continued with the third annual Hunter Syndrome Community Conference. In carrying on the theme of community togetherness, the 2023 conference brought new featured speakers and topics.

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All Past Events

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

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