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Continued Support

Resources

Learn about what we offer to the kids and families within our community. 

The Big Picture

What We Offer

Project Alive's resource hub is built for the Hunter syndrome community. You'll find helpful resources for the everyone under Community Resources, insightful offerings for teens and adults with MPS II under Journey into Adulthood, and a listing of all active clinical trials. These pages will continue to develop with new offerings including webinars and workshops. 

Key Offerings:

In order to develop programs effectively and to obtain the funding necessary to provide these services for free to Hunter syndrome community members, we need to collect important information from you. Please fill out the Community Program Enrollment below to access all of our offerings. You will also be notified when new services are launched.

Your information will never be shared. These demographics will only be used as data points. Your name or any other personal information will never be shared outside of Project Alive. This survey is strictly confidential. 

Community Program Enrollment

Have a Request?

Get in touch by filling out our form or emailing us at resources@projectalive.org

Get In Touch

Our Resources

How We Support You

OUR COMMUNITY
Resources

Understanding the challenges and nuances our community faces in their daily lives, we have curated a wealth of resources and tools to guide you along this journey. You will find supports in education, healthcare, federal resources and rights, and so much more. 

Resources
Finn smiling
NAVIGATING
Adulthood

College prep and the transition into adulthood can be a stressful time. We offer resources to families as they transition to a new part of their life and look forward into adulthood and future opportunities. 

  • College application aid
  • Resume-building webinars
  • Connections with internship partners
  • Higher education accessibility options 
Resources
familing on hiking trip
Funding Opportunities
MPS II Research

Project Alive seeks to support research in the Hunter syndrome space that fills critical gaps in current knowledge across basic science, critical care and translational therapeutics to improve the lives of those affected with Hunter syndrome and their families. 

Resources
ear with hearing aid

Recent Resources

May 3, 2025 | Chapel Hill, NC

Cure Within Reach Gala

Join us for an unforgettable evening at the Cure Within Reach Gala, a premier event dedicated to advancing research, advocacy, and care for individuals affected by MPS. Hosted at the prestigious Carolina Club in Chapel Hill, NC, this special night will bring together supporters, advocates, and leading experts in the field to fuel hope and progress.

Together, we are bringing a cure within reach.

Get Tickets