Continued Support


Learn about what we offer to the kids and families within our community. 

The Big Picture

What We Offer

Project Alive's resource hub is built for the Hunter syndrome community. You'll find helpful resources for the everyone under Community Resources, insightful offerings for teens and adults with MPS II under Journey into Adulthood, and a listing of all active clinical trials. These pages will continue to develop with new offerings including webinars and workshops. 

Key Offerings:

In order to develop programs effectively and to obtain the funding necessary to provide these services for free to Hunter syndrome community members, we need to collect important information from you. Please fill out the Community Program Enrollment below to access all of our offerings. You will also be notified when new services are launched.

Your information will never be shared. These demographics will only be used as data points. Your name or any other personal information will never be shared outside of Project Alive. This survey is strictly confidential. 

Have a Request?

Get in touch by filling out our form or emailing us at

Get In Touch

Our Resources

How We Support You


Understanding the challenges and nuances our community faces in their daily lives, we have curated a wealth of resources and tools to guide you along this journey. You will find supports in education, healthcare, federal resources and rights, and so much more. 

Finn smiling

College prep and the transition into adulthood can be a stressful time. We offer resources to families as they transition to a new part of their life and look forward into adulthood and future opportunities. 

  • College application aid
  • Resume-building webinars
  • Connections with internship partners
  • Higher education accessibility options 
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Funding Opportunities
MPS II Research

Project Alive seeks to support research in the Hunter syndrome space that fills critical gaps in current knowledge across basic science, critical care and translational therapeutics to improve the lives of those affected with Hunter syndrome and their families. 

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Recent Resources

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.