Project Alive's resource hub is built for the Hunter syndrome community. You'll find helpful resources for the everyone under Community Resources, insightful offerings for teens and adults with MPS II under Journey into Adulthood, and a listing of all active clinical trials. These pages will continue to develop with new offerings including webinars and workshops.
In order to develop programs effectively and to obtain the funding necessary to provide these services for free to Hunter syndrome community members, we need to collect important information from you. Please fill out the Community Program Enrollment below to access all of our offerings. You will also be notified when new services are launched.
Your information will never be shared. These demographics will only be used as data points. Your name or any other personal information will never be shared outside of Project Alive. This survey is strictly confidential.