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About Us

We are Project Alive

We exist to find a cure for Hunter syndrome through research and advocacy, and providing education and resources to the Hunter syndrome community. We are here to give a voice to the families and children touched by Hunter syndrome.

mother and son reading a book together

OUR PATH TO A CURE

Our Mission and Vision

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Providing Resources

From college apps to family support, we are here for you
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Advocating for Families

We are ready to give you and your family the support you need
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Fundraising for a Cure

Our fundraising efforts help aid the search for the cure
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Supporting Research

With our grants and trails we aid in the research process
little boy smiling

HUMBLE BEGINNINGS

A History of Research and Hope

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our History

OUR PROMISE TO THE COMMUNITY

We Are Here For You

We welcome and embrace those families who are newly diagnosed. We hold close those families who are journeying alongside us. And we support and comfort those families whose children have passed – never forgetting the impact of their lives and the joy they brought us.

Our Mission

HERE FOR YOU

Meet the Project Alive Team

Get to know the people behind our amazing team at Project Alive and the people that support our cause.

Our Team
group of young men at conference
boy smiling
New Hampshire
Stratham, NH
Aiden C.
boy smiling with toy
New Jersey
Howell, NJ
Aiden M.
boy laughing and clapping
New Jersey
Ocean, NJ
Aiden S.

FRIENDS AND FAMILIES

Helping Families Across the Country

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our Stories

See What We've Been Up To

Updates and News

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PRESS
Project Alive Welcomes Dr. Kim Stephens as Emeritus Board Member
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PRESS
Project Alive Awards a $60,000 grant to MPS Superhero Foundation and Forms Formal Partnership
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PRESS
Project Alive and Action For Aidan partner with $400,000 towards scientific endeavors for Hunter syndrome
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EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome"
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Hunter syndrome family wearing Project Alive shirts
KGET News: Rare Disease Day: How Hunter syndrome affected a family
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Our Partners

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

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