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EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome"

KGET News: Rare Disease Day: How Hunter syndrome affected a family

WTVD ABC Raleigh International Day of People with Disabilities

ABC 13 Fight to Find a Cure: Las Vegas Man Explains his Journey with a Rare Disability

Spectrum News 1: South Bay Family Races Clock to Find Treatment Options for Son's Rare Disease

REDONDO BEACH, Calif. — Kristin McKay is doing everything she can to keep a smile on her 4-year-old son Charlie’s face. Charlie was born with Hunter syndrome, a rare genetic disease where the body can’t break down certain sugar molecules.

Parents Join Together Across Borders to Cure Rare Disease

Una Cura Para Adri Puts Over a Quarter of a Million Dollars Towards Project Alive’s Goal to Cure Hunter Syndrome

FGCU students need your vote for #MyGivingStory

The students created a video that could win up to $10,000 for Project Alive. But they need votes to win. Check out their video, share it on your social media and vote!

Car event creates community for Project Alive families

The second annual Cars & Cures Car Show brought together more than 70 car collectors of all kinds along with community members to support Project Alive in its effort to find a cure for Hunter syndrome.

FGCU hosts discussion with Dr. Fu after Hunter syndrome documentary screening

Dr. Haiyan Fu from the University of North Carolina School of Medicine joined Project Alive Vice President Mario Estevez, film producer Joey Howell and Florida Gulf Coast University students for a panel discussion and screen of the documentary Boys with Bigger Hearts at FGCU Oct. 18.

Petland donates $20K to Project Alive

Petland has provided Project Alive with a check for $20,000 to help fund clinical trials. Petland stores in Southern Florida, along with Petland, Inc., raised money through donations and drives in September.

EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome"

KGET News: Rare Disease Day: How Hunter syndrome affected a family

WTVD ABC Raleigh International Day of People with Disabilities

ABC 13 Fight to Find a Cure: Las Vegas Man Explains his Journey with a Rare Disability

Spectrum News 1: South Bay Family Races Clock to Find Treatment Options for Son's Rare Disease

Parents Join Together Across Borders to Cure Rare Disease

FGCU students need your vote for #MyGivingStory

Car event creates community for Project Alive families

FGCU hosts discussion with Dr. Fu after Hunter syndrome documentary screening

Petland donates $20K to Project Alive

Mark Cuban donates $250,000 to fight against rare disease

Published stories about Project Alive

Broadcast features about Project Alive

Podcasts featuring Project Alive