Back To News & Press All Articles BBC Breakfast Oliver "Ollie" Chu Ollie and Dr. Simon Jones made it on BBC Breakfast for a feature with Fergus Walsh about gene therapy for his MPSII Hunter Syndrome. Read More Boy with rare condition amazes doctors after world-first gene therapy | BBC News Three-year-old Oliver Chu has astounded doctors with his progress after becoming the first person in the world with his devastating disease to receive a ground-breaking gene therapy. Read More VC Star: Takeda Pharmaceutical unveils $170M expansion in Thousand Oaks Read More KGET News: Rare Disease Day: How Hunter syndrome affected a family Read More EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome" Read More ABC 13 Fight to Find a Cure: Las Vegas Man Explains his Journey with a Rare Disability Read More WTVD ABC Raleigh International Day of People with Disabilities Read More Spectrum News 1: South Bay Family Races Clock to Find Treatment Options for Son's Rare Disease REDONDO BEACH, Calif. — Kristin McKay is doing everything she can to keep a smile on her 4-year-old son Charlie’s face. Charlie was born with Hunter syndrome, a rare genetic disease where the body can’t break down certain sugar molecules. Read More Podcasts featuring Project Alive Read More Parents Join Together Across Borders to Cure Rare Disease Una Cura Para Adri Puts Over a Quarter of a Million Dollars Towards Project Alive’s Goal to Cure Hunter Syndrome Read More Broadcast features about Project Alive Read More Published stories about Project Alive Read More Mark Cuban donates $250,000 to fight against rare disease Read More Petland donates $20K to Project Alive Petland has provided Project Alive with a check for $20,000 to help fund clinical trials. Petland stores in Southern Florida, along with Petland, Inc., raised money through donations and drives in September. Read More FGCU hosts discussion with Dr. Fu after Hunter syndrome documentary screening Dr. Haiyan Fu from the University of North Carolina School of Medicine joined Project Alive Vice President Mario Estevez, film producer Joey Howell and Florida Gulf Coast University students for a panel discussion and screen of the documentary Boys with Bigger Hearts at FGCU Oct. 18. Read More Car event creates community for Project Alive families The second annual Cars & Cures Car Show brought together more than 70 car collectors of all kinds along with community members to support Project Alive in its effort to find a cure for Hunter syndrome. Read More FGCU students need your vote for #MyGivingStory The students created a video that could win up to $10,000 for Project Alive. But they need votes to win. Check out their video, share it on your social media and vote! Read More
