Age: 9
Noah's Family
Alameda, CA

Noah's Story

Noah has the most beautiful smile and contagious laugh. His parents could look into his eyes and know that he would always bring joy to their lives. But after receiving Noah's Hunter syndrome diagnosis, they can't help but see a future where Noah loses his ability to walk, talk, and share his famous giggle. While other parents are dreaming of their child's success or future grandchildren, Aywon and Krystal just dream that Noah will survive. They just want more time with their son. 

Noah and his dad holding up crabs
Noah smiling
Noah smiling with his mom and dad while in the hospital
Noah with his mom, dad, and sister
Noah holding an Easter egg above his head
Noah and Sister in front of statute
Noah smiling in front of artwork
Noah bike riding with his dad
Noah smiling in Santa pajamas on boat
Noah cleaning a car with his sister
Noah's first day of first grade

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.