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EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome"

KGET News: Rare Disease Day: How Hunter syndrome affected a family

WTVD ABC Raleigh International Day of People with Disabilities

ABC 13 Fight to Find a Cure: Las Vegas Man Explains his Journey with a Rare Disability

Spectrum News 1: South Bay Family Races Clock to Find Treatment Options for Son's Rare Disease

REDONDO BEACH, Calif. — Kristin McKay is doing everything she can to keep a smile on her 4-year-old son Charlie’s face. Charlie was born with Hunter syndrome, a rare genetic disease where the body can’t break down certain sugar molecules.

Parents Join Together Across Borders to Cure Rare Disease

Una Cura Para Adri Puts Over a Quarter of a Million Dollars Towards Project Alive’s Goal to Cure Hunter Syndrome

FGCU students need your vote for #MyGivingStory

The students created a video that could win up to $10,000 for Project Alive. But they need votes to win. Check out their video, share it on your social media and vote!

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