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EIN Presswire: "Raising Awareness for Rare Disease Day: Focus on Hunter Syndrome"

KGET News: Rare Disease Day: How Hunter syndrome affected a family

WTVD ABC Raleigh International Day of People with Disabilities

ABC 13 Fight to Find a Cure: Las Vegas Man Explains his Journey with a Rare Disability

Spectrum News 1: South Bay Family Races Clock to Find Treatment Options for Son's Rare Disease

REDONDO BEACH, Calif. — Kristin McKay is doing everything she can to keep a smile on her 4-year-old son Charlie’s face. Charlie was born with Hunter syndrome, a rare genetic disease where the body can’t break down certain sugar molecules.

Parents Join Together Across Borders to Cure Rare Disease

Una Cura Para Adri Puts Over a Quarter of a Million Dollars Towards Project Alive’s Goal to Cure Hunter Syndrome

FGCU students need your vote for #MyGivingStory

The students created a video that could win up to $10,000 for Project Alive. But they need votes to win. Check out their video, share it on your social media and vote!

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Project Alive’s Kristin McKay Shares Caregiver Perspective at 2025 Newborn Screening Meeting in Minneapolis

Project Alive President and Executive Director Kristin McKay spoke at the 2025 Newborn Screening Meeting in Minneapolis, MN, offering a powerful caregiver perspective on the importance of early detection for MPS II (Hunter syndrome). Her remarks highlighted how newborn screening can lead to earlier interventions, clinical trial access, and vital family support. Project Alive continues its national advocacy to add MPS II to newborn screening panels across all states.