Meet

Finn

Age: 9
allisonmuedder
Finn's Family
Dad:
Jon
Mom:
Allison
Sister:
Avery
Sister:
Mae
North Carolina
Charlotte, NC

Finn's Story

The Muedder Family is racing against time. Racing to help Finn run, play, swim, and enjoy life before Hunter syndrome robs his abilities. They are fighting to find a cure so that Finn's birthdays are a time to celebrate rather than a reminder of his terminal diagnosis. Allison and Jon are confident that the science is there for a cure, but the funding is not. You can help.

 

Finn playing with toys
Finn and his mom Allison
finn smiling
Finn and his dad dressed up for Halloween
Finn, Avery and Mae in the snow
Finn, Avery, Mae, with their dad Jon

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

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