• Contact Us
  • News & Press
  • Grant Inquiries
Events
Project / Alive Logo
Donate Donate
Placeholder Image
  • Stories
    • Meet Noah
    • Meet Sebastian
    • Meet Finn
    • All Stories
  • Hunter Syndrome
    • What is Hunter Syndrome?
    • Signs and Symptoms
  • About Us
    • About Project Alive
    • Mission and Vision
    • Our History
    • Our Team
    • Public Reporting
  • Resources
    • Resources
    • Community Resources
    • Journey Into Adulthood
    • Grant Inquiries
Contact Us News & Press Grant Inquiries Events
Project / Alive Logo
  • Stories
    Meet Noah
    The Story of the Nyugen Family
    Secondary Item Image
    Meet Sebastian
    The Story of the Estevez Family
    Secondary Item Image
    Meet Finn
    The Story of the Muedder Family
    Secondary Item Image
    All Stories
  • Hunter Syndrome
    • What is Hunter Syndrome?
    • Signs and Symptoms
    Hunter Syndrome
  • About Us
    • About Project Alive
    • Mission and Vision
    • Our History
    • Our Team
    • Public Reporting
    About Us
  • Resources
    • Resources
    • Community Resources
    • Journey Into Adulthood
    • Grant Inquiries
    Resources
Events
Donate
Donate
Back To News & Press
All Press
alt

Project Alive Welcomes Seven Members to the Scientific Advisory Board

Project Alive, a Hunter syndrome research and advocacy non-profit organization, announces the addition of the Scientific Advisory Board.

Read More
alt

Project Alive Welcomes New Board Member, Adam Haas

Project Alive, a non-profit organization dedicated to research and advocacy for MPS II, or Hunter syndrome, is pleased to announce the addition of Adam Haas to the Board of Directors.

Read More
alt

Action for Aidan donates $200,000 to Project Alive

This nonprofit, based out of New Hampshire, has tirelessly worked to raise money for Hunter syndrome research over the last four years.

Read More
alt

Project Alive Welcomes New Board Members and the Addition of Kyle Underwood as VP

Project Alive is thrilled to announce the new additions to the 2023 Board of Directors along with a new Vice President

Read More
alt

Project Alive Welcomes New Executive Director

The Project Alive Board is pleased to announce that Kristin Stockin has been hired as Executive Director of Project Alive

Read More
alt

Project Alive Welcomes Five New Board Members

Project Alive is pleased to welcome five new board members: Dave and Julie Ferrulo, Nathan Grant, Elizabeth Snarey, and Kyle Underwood.

Read More
alt

Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive

Read More
alt

Cyclists complete four state, 1200-mile journey

Cyclists on a 1200-mile journey across four states to raise awareness of and funds for Hunter syndrome and Project Alive, cycling through North Carolina, South Carolina, Georgia and Florida.

Read More
alt

Project Alive raises nearly $300,000 with #15byMay15; continues push to fund a cure

Read More
alt

Dr. Kim Stephens gives a Project Alive update for 2019

Dr. Kim Stephens, president of Project Alive, gives an update and review of the accomplishments of the organization in 2019.

Read More
alt

Dr. Kim Stephens becomes second Project Alive president

Dr. Kim Stephens became just the second president of Project Alive in February 2021

Read More
alt

Safety studies nearing completion in gene therapy drug trial

The safety study is a necessary first step in the process of a gene therapy drug trial.

Read More
alt

Project Alive president recognized with honors for work in rare disease research advocacy

Read More
alt

Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research

Read More
Project Alive Logo
Donate Donate
Donate to the Cause
Want to support our mission? Donations can be made through our site, mail, phone, and through Facebook and GoFundMe.
Donate GoFundMe Facebook
Want to stay up-to-date with events, new resources, and other news realted to Project Alive? Sign up for our newsletter below!
Project Alive Logo
Privacy Policy Contact Us
About Us
  • About Project Alive
  • Mission and Vision
  • Our History
  • Our Team
  • Public Reporting
Hunter Syndrome
  • What is Hunter Syndrome?
  • Signs and Symptoms
Resources
  • Resources
  • Community Resources
  • Journey Into Adulthood
  • Grant Inquiries
News and Press
  • News
  • Press

Project Alive is a 501(c)(3) Not-for-profit, registered in the State of Tennessee, Tax ID# 46-4617970.

Copyright © 2023 Project Alive All Rights Reserved.
Project Alive is a 501(c)(3) Not-for-profit, registered in the State of Tennessee, Tax ID# 46-4617970.
Crafted By