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Project Alive Welcomes New Board Members

Project Alive welcomes new board members for 2025: Katey Hoffman, MD, Cory Briddle, Victor Nwaba, Anne and Jeff Denneen, and Aaron J. Byzack.

Project Alive Welcomes Dr. Kim Stephens as Emeritus Board Member

Project Alive Awards a $60,000 grant to MPS Superhero Foundation and Forms Formal Partnership

Project Alive and Action For Aidan partner with $400,000 towards scientific endeavors for Hunter syndrome

Project Alive Welcomes New Board Members and Chairman

Project Alive Releases Letter to the Hunter Syndrome Community

Project Alive's Inaugural Hunter Syndrome Family Fair and Casino Night Raises $68,000 for Research and Support Programs

Project Alive Welcomes Seven Members to the Scientific Advisory Board

Project Alive, a Hunter syndrome research and advocacy non-profit organization, announces the addition of the Scientific Advisory Board.

Action for Aidan donates $200,000 to Project Alive

This nonprofit, based out of New Hampshire, has tirelessly worked to raise money for Hunter syndrome research over the last four years.

Project Alive Welcomes New Board Member, Adam Haas

Project Alive, a non-profit organization dedicated to research and advocacy for MPS II, or Hunter syndrome, is pleased to announce the addition of Adam Haas to the Board of Directors.

Project Alive Welcomes New Board Members and the Addition of Kyle Underwood as VP

Project Alive is thrilled to announce the new additions to the 2023 Board of Directors along with a new Vice President

Project Alive Welcomes New Executive Director

The Project Alive Board is pleased to announce that Kristin Stockin has been hired as Executive Director of Project Alive

Project Alive Welcomes Five New Board Members

Project Alive is pleased to welcome five new board members: Dave and Julie Ferrulo, Nathan Grant, Elizabeth Snarey, and Kyle Underwood.

Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive

Cyclists complete four state, 1200-mile journey

Cyclists on a 1200-mile journey across four states to raise awareness of and funds for Hunter syndrome and Project Alive, cycling through North Carolina, South Carolina, Georgia and Florida.

Project Alive raises nearly $300,000 with #15byMay15; continues push to fund a cure

Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research

Project Alive president recognized with honors for work in rare disease research advocacy

Safety studies nearing completion in gene therapy drug trial

The safety study is a necessary first step in the process of a gene therapy drug trial.

Dr. Kim Stephens becomes second Project Alive president

Dr. Kim Stephens became just the second president of Project Alive in February 2021

Dr. Kim Stephens gives a Project Alive update for 2019

Dr. Kim Stephens, president of Project Alive, gives an update and review of the accomplishments of the organization in 2019.