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Storytelling Master Class and Workshop


We’re excited to offer a Storytelling Master Class and Workshop on Wed., Sept. 6! Learn effective storytelling strategies from our communications partner, SmithSolve, and practice sharing your experience in any setting.

We are delighted to work alongside so many great patient advocacy organizations to work with the community on storytelling. It is a skill that can be used in so many areas of life: IEP meetings, raising awareness within your local community, fundraising on social media, and promoting change in legislation.

This event is free to join. September 6, 2023 12:00 - 2:00 pm EST.



October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.