Project Alive Awards a $60,000 grant to MPS Superhero Foundation and Forms Formal Partnership

May 10, 2024

Project Alive, a national Hunter syndrome research and advocacy organization, has partnered with the MPS Superhero Foundation to increase support to the Hunter syndrome community.

Hunter syndrome, also known as Mucopolysaccharidosis type II (or MPS II), is a life-limiting, progressively debilitating, x-linked lysosomal storage disorder. It affects roughly 2,000 people worldwide, the majority of which are children with life expectancies before reaching adulthood.

Both organizations have long shared the mission to increase awareness of Hunter syndrome, fund research, and support the Hunter syndrome community. MPS Superhero Foundation also works with other forms of MPS. The partnership between the two organizations will allow for greater reach to the MPS II community and collaboration on common goals.

The MPS Superhero Foundation will receive a grant from Project Alive in the amount of $60,000 to offer financial support to families impacted by Hunter syndrome and provide funding for affected families to attend counseling services. The foundation has developed a program to review applications for support and fund them accordingly for families that are experiencing financial hardship due to their child’s diagnosis of Hunter syndrome. MPS Superhero Foundation will announce the commencement of this program at a later date.

Project Alive and MPS Superhero Foundation will soon embark on co-hosting regular virtual support groups. These sessions will include a variety of topics such as sibling groups, grief groups, and more. Some sessions will be conducted by a licensed social worker while others may be held as intimate, unmoderated sessions for family members. Detailed announcements will be shared by both groups soon.

Monica Anaya, President and Co-Founder of MPS Superhero Foundation, states “We are excited to join forces with Project Alive on a mission to help families affected by MPS II. We know this program will help with the mental wellness in our community and provide financial and emotional support during the most difficult times. Through feedback from our community, we are determined to meet the needs as best as we can in order to help give a better quality of life, not to just the patients, but their family, as well. We live strong by our values and know that deep down, “You don’t need super powers to be a Superhero”. With our powers combined, we can help many affected families in our community. I truly believe this program will do just that.”

To learn more about these organizations, visit www.projectalive.org and mpssuperhero.org.