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WTVD ABC Raleigh International Day of People with Disabilities

Dr. Kim Stephens, President of Project Alive, shares her son's story to shine a light on Hunter syndrome for International Day of Persons with Disabilities. Watch the story below or read the full article here.

Wilson, A. (2023, December 4). Cole’s story: Advocates shine spotlight on rare diseases. ABC11 Raleigh-Durham.


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October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.