Preparing
Journey into Adulthood
Project Alive is a powerful voice for children and adults with Hunter syndrome, bringing together families and advocates with researchers, industry, and regulators.
Continuing Support
Approaching Adulthood
Welcome to Project Alive’s Journey into Adulthood, a page dedicated to providing support and resources to teens and adults diagnosed with Hunter syndrome, as well as their caregivers. Understanding the challenges and nuances our community faces when transitioning into adulthood, we have curated a wealth of resources and tools to allow for our teen and adult community to live and lead successful lives. Currently we are focused on the attenuated individuals, with goals to expand to those with neuropathic MPS II. If you are looking to get more involved in the Journey into Adulthood, please reach out to resources@projectalive.org.
Your Resources
Check back here for these offering in development:
- Fact Packs
- Professional development tools and workshops
- Navigating transition from pediatric to adult medical care
- Career and educational pipelines
- Mentorship
- Federal resources for health and education
- IEP workshops
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Give Our Kids a Chance to Grow Up
Project Alive envisions a world where every individual with Hunter syndrome has access to curative medicine. Help us make that dream a reality.