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STUDY: Transitioning from Pediatric to Adult Health Care in Lysosomal Diseases: The MPS Experience

Project Alive has funded the "Transitioning from Pediatric to Adult Health Care in Lysosomal Diseases: The MPS Experience" study by Nathan Grant, Susan Shanske, Dr. Julie Eisengart, Dr. Joseph Muenzer, Dr. Ahmet Uluer, Kristin McKay, and Dr. Kim Stephens. The study survey will be live soon. Please stay tuned for the study link. The attached file is the official study poster presented at WORLDSymposium in February, 2024. 

Click here to view the file.

 

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

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