Sebastian

Sebastian's Story

The Estevez’s just wanted to give their son Sebastian the ability to grow and choose his path in life. Like other families, they noticed some health issues affecting Sebastian. After their own research led them to meet with a geneticist, they were devastated when they received the diagnosis, their son had Hunter syndrome. “I enjoy the present but in the back of my mind, he will lose that”. Jenn and Mario Estevez are not alone in this thought. Gene therapy is the hope in all of this, and money should not be what stops saving these boys. The support of others is what will help these boys live fuller lives.