Meet Wesley



Age: 2.5
Wesley's Family
Chicago, IL

Wesley's Story

You would be hard-pressed to find a day where Wesley is not smiling, laughing, and being his happy, fun-loving self. You would never know that this sweet boy has been through more in his two years than most adults will go through in a lifetime. Diagnosed in 2022, 18-month old Wesley was not walking like all the other kids his age, so his parents, Katarina and Brian, decided to investigate. That is when their lives changed forever. 

Hearing the words, Hunter Syndrome was something they never expected. Suddenly, their lives had turned upside down and they needed support. That is when they found Project Alive. 

"There are a lot of challenges. Wesley has appointments every week for infusions, therapies, and specialists."

Project Alive has helped them meet other families going through the same thing. Watching your baby fight for their life day in and day out is something no parent should have to experience, but with Project Alive, they don't have to do it alone.

"This is impossible. No one should have to go through this journey."

Katarina wants other parents to know that Project Alive is here and ready to help. Without them, she does not know where she would be. Asking for help is the bravest thing a person can do, and that is why Project Alive is here.

"You're strong, because I know how much work comes with this diagnosis and you're doing amazing."

Supporting Project Alive means helping to find a cure, and helping families like Wesley's get the support they need to keep going. You could make a difference in so many lives with your support. 

Thank you for your generous heart. You are ensuring that Wesley can stay his happy, fun-loving self for as long as possible. 

You are the miracle he needs.


Donate for Wesley
This is impossible. No one should have to go through this journey, we need a cure for these kids