Community Program Enrollment Form

First Name *

Last Name *

Email Address *

Phone Number

I consent to receiving SMS from Project Alive *

Yes

No

By checking this box, I consent to receive reminders, program updates, and other information SMS from Project Alive, Reply STOP to opt-out; Reply HELP for support: Message & data rates may apply; Message frequency may vary. Visit https://projectalive.org/privacy-policy for our Terms and Conditions and Privacy Policy.

Street Address *

Zip Code *

How many of your children have/had Hunter syndrome? If you are an adult with Hunter syndrome, please write "self." *

Names of children with Hunter syndrome *

DOB (MM/DD/YYYY) of children/adults with Hunter syndrome *

Date of passing if applicable (MM/DD/YY).

Which form of MPS II does your child/ren or yourself have? *

Treatments received *

None

ERT

Stem Cell Transplant

Gene Therapy

Blood Brain Barrier Penetrating ERT

Itrathecal

If in a clinical trial, please specify which one

Race/Ethnicity *

American Indian or Alaska Native

Asian

Black or African American

Native Hawaiian or Other Pacific Islander

Hispanic or Latino

White

Household Income *

Household Size *

Do you receive any government assistance? *

WIC, SNAP, other food assistance

SSI

Housing Assistance

State Financial Assistance

IHSS

Other

No Assistance Received