Get Involved | Project Alive

Events & Conferences Shop

Donate

Donate

Join the Cause

Ways to Get Involved

Get involved in ways that matter most to you. Whether you want to give your time or support a cause you care about, explore how you can make an impact through volunteering and fundraising.

Raising Funds

Fundraising Toolkits

Hosting an event—local or virtual? Our fundraising toolkits include checklists and tips to help you raise money successfully.

Our Toolkits

1

lend a hand

Volunteer

Discover meaningful ways to volunteer and make a difference in your community.

see volunteer roles

2

our promise to the community

Our Mission Statement

We welcome and embrace those families who are newly diagnosed. We hold close those families who are journeying alongside us. And we support and comfort those families whose children have passed – never forgetting the impact of their lives and the joy they brought us.

OUR MISSION

See what we've been up to

Updates and News

View More

BBC Breakfast Oliver "Ollie" Chu

Ollie and Dr. Simon Jones made it on BBC Breakfast for a feature with Fergus Walsh about gene therapy for his MPSII Hunter Syndrome.

Boy with rare condition amazes doctors after world-first gene therapy | BBC News

Three-year-old Oliver Chu has astounded doctors with his progress after becoming the first person in the world with his devastating disease to receive a ground-breaking gene therapy.

Project Alive Launches "Hunter Health"

VC Star: Takeda Pharmaceutical unveils $170M expansion in Thousand Oaks

footprints inside heart

Project Alive’s Kristin McKay Shares Caregiver Perspective at 2025 Newborn Screening Meeting in Minneapolis

Project Alive President and Executive Director Kristin McKay spoke at the 2025 Newborn Screening Meeting in Minneapolis, MN, offering a powerful caregiver perspective on the importance of early detection for MPS II (Hunter syndrome). Her remarks highlighted how newborn screening can lead to earlier interventions, clinical trial access, and vital family support. Project Alive continues its national advocacy to add MPS II to newborn screening panels across all states.