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KGET News: Rare Disease Day: How Hunter syndrome affected a family

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NBC Bakersfield KGET News

February 29, 2024

Rare Disease Day: How Hunter syndrome affected a family

Watch Here:

https://www.youtube.com/watch?v=BZf2AIZ0RCc

 

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October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

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