• Events
  • Contact Us
  • News & Press
  • Grant Inquiries
Shop
Site Search
Project / Alive Logo
Donate
Project Alive - More Story
  • Stories
    • Meet Atlas
    • Meet Noah
    • Meet Finn
    • All Stories
  • Hunter Syndrome
    • What is Hunter Syndrome?
    • Signs and Symptoms
    • Specialists and Therapies
  • About Us
    • About Project Alive
    • Mission and Vision
    • Our History
    • Our Team
    • Public Reporting
  • Resources
    • Resources All Resources
    • Parents and Caregivers
    • Affected Individual
    • Provider
    • Siblings
    • Programs All Programs
    • Young Leaders Advocacy Program
    • IEP Consultation
    • Community Chats
    • Helping Hands
    • Relocation Assistance
    • Individualized Case Management
Donate
Shop Events Site Search
Grant Inquiries Contact Us News & Press
Project / Alive Logo
  • Stories
    Meet Atlas
    The Story of the Neuerburg Family
    Meet Noah
    The Story of the Nyugen Family
    Meet Finn
    The Story of the Muedder Family
    All Stories
    Background Image for Meet Atlas Menu
    Background Image for Meet Noah Menu
    Background Image for Meet Finn Menu
  • Hunter Syndrome
    • What is Hunter Syndrome?
    • Signs and Symptoms
    • Specialists and Therapies
    Hunter Syndrome
  • About Us
    • About Project Alive
    • Mission and Vision
    • Our History
    • Our Team
    • Public Reporting
    About Us
  • Resources
    • Resources
    • Parents and Caregivers
    • Affected Individual
    • Provider
    • Siblings
    • Programs
    • Young Leaders Advocacy Program
    • IEP Consultation
    • Community Chats
    • Helping Hands
    • Relocation Assistance
    • Individualized Case Management
    • All Programs
Events
Donate
Donate
Back To All Articles

Published stories about Project Alive

NBC Miami

South Florida Family Raising Funds for Clinical Trial as Son Fights Deadly Syndrome

Tennessean 

Mom raises $1M to fight disease that could kill her son and she’s not done yet

Atlanta Journal Constitution

Parents race against time to try and save their son Easton

Today

Mom races against time to fund research trial for son’s fatal disease

Have something you think we should share? Contact us at 313-31-ALIVE (313-312-5483) or press@projectalive.org.

Project Alive Logo
Donate Donate
Donate to the Cause
Want to support our mission? Donations can be made through our site, mail, phone, and through Facebook and GoFundMe.
Donate GoFundMe Facebook
Sign Up For Our Newsletter
Want to stay up-to-date with events, new resources, and other news realted to Project Alive? Sign up for our newsletter below!
Charity Navigator - Three Star Platinum Transparency 2024. Candid.
Project Alive Logo
Privacy Policy Contact Us Store Events
About Us
  • About Project Alive
  • Mission and Vision
  • Our History
  • Our Team
  • Public Reporting
Hunter Syndrome
  • What is Hunter Syndrome?
  • Signs and Symptoms
  • Specialists and Therapies
News and Press
  • News
  • Press
Resources
  • Resources
  • Parents and Caregivers
  • Affected Individual
  • Provider
  • Siblings

Project Alive is a 501(c)(3) Not-for-profit, registered in the State of Tennessee, Tax ID# 46-4617970.

Copyright © 2025 Project Alive All Rights Reserved.
Project Alive is a 501(c)(3) Not-for-profit, registered in the State of Tennessee, Tax ID# 46-4617970.
Crafted By