2024 Hunter Syndrome Family Fair

JOIN US!

Saturday, October 26, 2024

JOIN US!

Hunter Syndrome Family Fair

Join Hunter syndrome families, clinicians, therapists, educators, and other supporters in our second annual Hunter Syndrome Family Fair. Enjoy a variety of speakers, interactive workshops, and a resource expo! This event is free to anyone connected to the Hunter syndrome community, including all other MPS community members.

Hunter Syndrome Family Fair 2024

Project Alive's Hunter Syndrome Family Fair is all about the MPS II community! This event is free for all MPS II community members. Physicians, therapists, educators, genetic counselors, and other professionals working within the MPS II space are welcome to attend.

What is happening at this event?

Speaker sessions focused on Hunter syndrome
Interactive workshops
Free kid's camp
Resource expo
Family connection
Breakfast and lunch will be provided
The WonderFall Family Festival will be held after this event. Please register for this event here: WonderFall Family Festival

WonderFall Family Festival

Following the Hunter Syndrome Family Fair, Project Alive teams up with the Hunter Syndrome Foundation to co-host the WonderFall Family Festival. This event will be held about a mile away from the conference hotel at the RoughRider's Stadium. The hotel has a free shuttle available. This event is open to the public. The WonderFall Family Festival will consist of carnival games, bounce houses, train rides, face painting, bingo, trunk or treat, and more! You will need to sign up for this event separetly. Please visit this page to learn more and get your tickets!

Room Block:

Project Alive has a room block at the conference hotel, the Westin Dallas Stonebriar Golf Resort & Spa.

Please use this link to book your room using our group rate: Book your room here.

Scholarships:

There are a limited number of scholarships available. Scholarships will cover air fair/mileage, taxi fees, and two night hotel stay for up to 4 people within the same household. Travel arrangements can be reimbursed, or Project Alive can book them for you if paying upfront would cause financial burden. Scholarship awardees will need to attend one meeting with Project Alive to establish all travel arrangements, sign an award letter, and confirm receipt of award email by the deadline. Applications are due by July 15, 2024. If you are not selected for the scholarship, you will be placed on the waitlist in the event there is a cancellation or additional funding is obtained by Project Alive. Priority will go to families with the most financial need, families that are newly diagnosed, and families that have not attended a MPS conference in over 5 years.

Complete the scholarship application here.

www.projectalive.org

give@projectalive.org

Schedule

October 26

7:00 am - 8:00 am CST

Caverns

Check in, breakfast, networking, expo

Welcome! It's time to check in, enjoy breakfast, browse the expo, and chat with your fellow attendees.

7:30 am - 2:00 pm CST

Lonestar

Kid's Camp Opens

Check your kids in to the kid's camp so they can enjoy many games, crafts, and activities while you enjoy the sessions.

8:00 am - 8:45 am CST

Sunset Ballroom

Community Fireside Chat

Enjoy a moderated session with your fellow Hunter syndrome community members. This is a time to ask questions and share your wisdom and experience!

8:45 am - 9:30 am CST

Sunset Ballroom

CPR Workshop

Learn about first aid and CPR and even have a chance to practice your CPR skills. This workshop will allow you to feel prepared for any emergency response.

9:45 am - 10:30 am CST

Sunset Ballroom

Neuroplasticity Workshop

Hear from a neuroplasticity expert on how to incorporate simple exercises and activities into your child's daily life to promote connections in the brain.

10:45 am - 11:15 am CST

Sunset Ballroom

Announcing Soon

Check back soon for more details!

11:15 am - 12:00 pm CST

Sunset Ballroom

How to Tell Your Story

Hone in your story telling skills to help in advocacy and awareness efforts.

12:00 pm - 1:00 pm CST

Sunset Ballroom

Lunch

Enjoy lunch on us! Lunch will be provided in the kid's camp for all children participating in camp.