2024 Hunter Syndrome Family Fair

JOIN US!

Saturday, October 26, 2024

JOIN US!

Hunter Syndrome Family Fair

Join Hunter syndrome families, clinicians, therapists, educators, and other supporters in our second annual Hunter Syndrome Family Fair. Enjoy a variety of speakers, interactive workshops, and a resource expo! This event is free to anyone connected to the Hunter syndrome community, including all other MPS community members.
Register

Hunter Syndrome Family Fair 2024

Project Alive's Hunter Syndrome Family Fair is all about the MPS II community! This event is free for all MPS II community members. Physicians, therapists, educators, genetic counselors, and other professionals working within the MPS II space are welcome to attend.

What is happening at this event?

  • Speaker sessions focused on Hunter syndrome
  • Interactive workshops
  • Free kid's camp
  • Resource expo
  • Family connection
  • Breakfast and lunch will be provided
  • The WonderFall Family Festival will be held after this event. Please register for this event here: WonderFall Family Festival

 

WonderFall Family Festival

Following the Hunter Syndrome Family Fair, Project Alive teams up with the Hunter Syndrome Foundation to co-host the WonderFall Family Festival. This event will be held about a mile away from the conference hotel at the RoughRider's Stadium. The hotel has a free shuttle available. This event is open to the public. The WonderFall Family Festival will consist of carnival games, bounce houses, train rides, face painting, bingo, trunk or treat, and more! You will need to sign up for this event separetly. Please visit this page to learn more and get your tickets!

 

Room Block:

Project Alive has a room block at the conference hotel, the Westin Dallas Stonebriar Golf Resort & Spa. 

Please use this link to book your room using our group rate: Book your room here.

 


Scholarships:

There are a limited number of scholarships available. Scholarships will cover air fair/mileage, taxi fees, and two night hotel stay for up to 4 people within the same household. Travel arrangements can be reimbursed, or Project Alive can book them for you if paying upfront would cause financial burden. Scholarship awardees will need to attend one meeting with Project Alive to establish all travel arrangements, sign an award letter, and confirm receipt of award email by the deadline. Applications are due by July 15, 2024. If you are not selected for the scholarship, you will be placed on the waitlist in the event there is a cancellation or additional funding is obtained by Project Alive. Priority will go to families with the most financial need, families that are newly diagnosed, and families that have not attended a MPS conference in over 5 years. 

Complete the scholarship application here.

 


Contact us:

www.projectalive.org

give@projectalive.org

Schedule
October 26
7:00 am - 8:00 am CST
Caverns
Check in, breakfast, networking, expo
Welcome! It's time to check in, enjoy breakfast, browse the expo, and chat with your fellow attendees.
7:30 am - 2:00 pm CST
Lonestar
Kid's Camp Opens
Check your kids in to the kid's camp so they can enjoy many games, crafts, and activities while you enjoy the sessions.
8:00 am - 8:30 am CST
Sunset Ballroom
Community Fireside Chat
Enjoy a moderated session with your fellow Hunter syndrome community members. This is a time to ask questions and share your wisdom and experience!
8:30 am - 9:15 am CST
Sunset Ballroom
CPR Workshop
Learn about first aid and CPR and even have a chance to practice your CPR skills. This workshop will allow you to feel prepared for any emergency response.
9:15 am - 10:00 am CST
Sunset Ballroom
Neuroplasticity Workshop
Hear from a neuroplasticity expert on how to incorporate simple exercises and activities into your child's daily life to promote connections in the brain.
10:15 am - 11:00 am CST
Sunset Ballroom
Hunter Syndrome Treatments and Clinical Trials
11:00 am - 12:00 pm CST
Sunset Ballroom
Industry/Trial Updates
12:00 pm - 1:00 pm CST
Sunset Ballroom
Lunch
Enjoy lunch on us! Lunch will be provided in the kid's camp for all children participating in camp.
1:00 pm - 2:00 pm CST
Sunset Ballroom
Super Powering Your Child's Learning Experience
2:00 pm - 2:00 pm CST
Sunset Ballroom
Closing
4:00 pm - 9:00 pm CST
Rough Rider's Stadium
WonderFall Family Festival
Head over to the Rough Rider's Stadium to join us at the WonderFall Family Festival! Prior registration for this event is required.
Our Sponsors
Become a Sponsor
Partnership
Motivator

October 26, 2024

WonderFall Family Festival

Project Alive and The Hunter Syndrome Foundation are teaming up to host the WonderFall Family Festival on October 26, 2024 at the Rough Rider's Stadium in Frisco, TX! This fall festival will be an inclusive, family friendly event to raise awareness about Hunter syndrome and support the work being done in research, advocacy, and community support by Project Alive.

LEARN MORE