2024 Hunter Syndrome Family Fair
Speakers
Schedule
October 26
Caverns
Check in, breakfast, networking, expo
Welcome! It's time to check in, enjoy breakfast, browse the expo, and chat with your fellow attendees.
Lonestar
Kid's Camp Opens
Check your kids in to the kid's camp so they can enjoy many games, crafts, and activities while you enjoy the sessions.
Sunset Ballroom
Community Fireside Chat
Enjoy a moderated session with your fellow Hunter syndrome community members. This is a time to ask questions and share your wisdom and experience!
Sunset Ballroom
CPR Workshop
Learn about first aid and CPR and even have a chance to practice your CPR skills. This workshop will allow you to feel prepared for any emergency response.
Sunset Ballroom
Brain Building: How the Brain is designed to work, Why it doesn’t, and How to Change That
Hear from a neuroplasticity expert and therapist on how to incorporate simple exercises and activities into your child's daily life to promote connections in the brain.
Sunset Ballroom
Hunter Syndrome Treatments and Clinical Trials
Dr. Joseph Muenzer, Director of Muenzer MPS Center and Bryson Distinguished Professor, will highlight available treatments and clinical trials for MPS II. This session will give a brief overview of MPS II and it's current treatment landscape and the hope for the future.
Sunset Ballroom
RGX-121 Gene Therapy for the Treatment of Severe Mucopolysaccharidosis Type II (MPS II): CAMPSIITE® Phase I/II/III: A Clinical Study Update
Sunset Ballroom
Lunch
Enjoy lunch on us! Lunch will be provided in the kid's camp for all children participating in camp.
Sunset Ballroom
Super Powering Your Child's Learning Experience
Family Support Specialist, Shannon Tibbits, and Communications Teacher, Caroline Herring, discuss ways to identify and embrace your child's different learning styles. The two will share how they empower parents to take the anxiety out of ARD/IEP meetings to set the tone for success.
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