What is Hunter Syndrome?
Hunter syndrome is a rare genetic disease that is progressively debilitating, life-limiting and without a cure. It occurs almost exclusively in males and currently affects approximately 500 boys in the U.S. and less than 2,000 worldwide. Individuals with Hunter syndrome have a defect in the gene that normally causes the body to make the enzyme iduronate-2-sulfatase (I2S) which is responsible for the breakdown of cellular waste called glycosaminoglycans or GAGs. Without that necessary enzyme, the accumulation of these GAGs leads to progressive damage throughout the entire body.
Project Alive
Project Alive exists to find a cure for Hunter syndrome through research and advocacy, and provide education and resources to the Hunter syndrome community.
Project Alive is a powerful voice for children and adults with Hunter syndrome, bringing together families and advocates with researchers, industry, and regulators. The organization funds promising research, assists researchers and industry with designing research studies for our community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.
501(c)(3) tax ID: 46-4617970
Hunter Syndrome Foundation
The Hunter Syndrome Foundation is a 501(c)(3) non-profit organization with a mission to fund research, support families, and raise awareness for Hunter syndrome. The Foundation was founded in 2013 in Proper, TX by parents with children affected by Hunter syndrome. Over the years, the Hunter Syndrome Foundation has hosted a fun, awareness driven event called Dancing with Dominic in Prosper, TX. The community has come to adore this event and many look forward to it each year. The Hunter Syndrome Foundation is excited to partner with Project Alive this year to expand Dancing with Dominic by co-hosting the WonderFall Family Festival and bring Hunter syndrome families in from across the country.
501(c)(3) tax ID: 46-4296623
What to Expect
When is the event?
Saturday, October 26, 2024
4:00 pm - Sensory Hour, all families that would benefit from a low sensory environment are welcome to join us at this time.
5:00 pm - General Admission
9:00 pm - Event Ends
Where is the event?
The Rough Rider's Stadium
7300 Rough Riders Trl
Frisco, TX 75034
Enter at the left field entrance on Texas Rangers Drive (see map below).
What is happening at the event?
- Carnival games
- Bounce houses
- Train ride
- Face painting
- Trunk or treat
- Bingo
- Vendor stands
- Concessions
- Raffles
- Silent auction
- WonderFall bar (21+)
- Performances from local groups
- Music and more!
How will the Activity Tickets work?
Activity tickets will be your way of paying for each activity. You may purchase these activity tickets individually or in bundles at a discount. See "buy tickets" for more details. Some activities, such as trick or treat and live entertainment, are at no additional cost. Wristbands can be purchased to have unlimited access to the carnival games and bounces house. Activity tickets can be used to purchase the following activities with the associated amount of tickets required (the quantity of tickets is subject to minimal adjustments):
- Concession stand food: 5 tickets
- Alcoholic beverage: 4 tickets
- Train ride: 2 tickets
- Face paint: 3 tickets
- Bingo card: 2 tickets
Activity tickets are not the same as raffle tickets. Raffle tickets will be sold separately.
Do I need to register?
Yes, all attendees will need to register in advance. Registration allows us to prepare the correct headcount for food, security, and other accommodations.
Do I need cash?
No, all event activities are available for purchase using our online ticketing program. You may purchase some items ahead of time and can purchase more while at the event using this platform and available QR codes.
Are there sponsorship opportunities?
Yes! Sponsors of this event will receive many opportunities to feature their logo, participate in the event, and set up a vendor booth. Please visit the sponsorship page to learn more here.
Can I donate or volunteer?
Yes! In-kind donations are needed for prizes, auctions, and raffles. You can find the in-kind donation form on our sponsorship form. Financial donations can be made through this site or by visiting www.projectalive.org/donate.
Volunteers are greatly needed for this event! Please email us at give@projectalive.org.