Parents Join Together Across Borders to Cure Rare Disease Parents Join Together Across Borders to Cure Rare Disease Una Cura Para Adri Puts Over a Quarter of a Million Dollars Towards…
FGCU students need your vote for #MyGivingStory The students at Florida Gulf Coast University have long supported Project Alive, even forming the organization Hunting for a Cure on campus…
Dr. Kim Stephens gives a Project Alive update for 2019 Dr. Kim Stephens, president of Project Alive, gives an update and review of the accomplishments of the organization in 2019.
Car event creates community for Project Alive families NOLENSVILLE, TN – The second annual Cars & Cures Car Show brought together more than 70 car collectors of all kinds along…
FGCU hosts discussion with Dr. Fu after Hunter syndrome documentary screening Dr. Haiyan Fu from the University of North Carolina School of Medicine joined Project Alive Vice President Mario Estevez, film producer Joey…
Mark Cuban doantes $250,000 to fight against rare disease Mark Cuban donates $250,000 to fight against rare disease
Published stories about Project Alive NBC Miami South Florida Family Raising Funds for Clinical Trial as Son Fights Deadly Syndrome Tennessean Mom raises $1M to fight…
Broadcast features about Project Alive Charlotte Today: Allison Muedder and Jon Muedder along with their son Finn tell you how you can get involved with Project Alive…
Project Alive Welcomes New Board Member, Adam Haas March 20, 2023 Project Alive, a non-profit organization dedicated to research and advocacy for MPS II, or Hunter syndrome, is pleased to…
Project Alive Welcomes New Board Members and the Addition of Kyle Underwood as VP February 7th, 2023 Project Alive, a Hunter syndrome research and advocacy non-profit organization, is thrilled to announce the new additions to…
Action for Aidan donates $200,000 to Project Alive There is nothing like a parent’s love to turn a hopeless diagnosis into a fight to save the lives of children around…
Project Alive Welcomes New Executive Director The Project Alive Board is pleased to announce that Kristin Stockin has been hired as Executive Director of Project Alive. Kristin has…
Project Alive Welcomes Five New Board Members Project Alive, a Hunter syndrome research and advocacy non-profit organization, is pleased to welcome five new board members: Dave and Julie Ferrulo,…
Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive Patient-Reported Data Survey to Examine and Advance Treatment of Hunter Syndrome Dover, MA – November 19, 2019 – Backpack Health, a free mobile and…
Dr. Kim Stephens becomes second Project Alive president Dr. Kim Stephens became just the second president of Project Alive in February 2019, taking the reins from founding president, Melissa Hogan,…
Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research Partnership will provide the scientific community with patient reported data needed to advance treatment and cures Thompson’s Station, TN, and Dover, MA…
Safety studies nearing completion in gene therapy drug trial The safety studies needed to begin the gene therapy drug trial for a promising cure for Hunter Syndrome are nearing completion, according…