About Us

We are Project Alive

We exist to find a cure for Hunter syndrome through research and advocacy, and providing education and resources to the Hunter syndrome community. We are here to give a voice to the families and children touched by Hunter syndrome.

mother and son reading a book together

OUR PATH TO A CURE

Our Mission and Vision

Learn More
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Providing Resources

From college apps to family support, we are here for you
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Advocating for Families

We are ready to give you and your family the support you need
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Fundraising for a Cure

Our fundraising efforts help aid the search for the cure
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Supporting Research

With our grants and trails we aid in the research process
little boy smiling

HUMBLE BEGINNINGS

A History of Research and Hope

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our History

OUR PROMISE TO THE COMMUNITY

We Are Here For You

We welcome and embrace those families who are newly diagnosed. We hold close those families who are journeying alongside us. And we support and comfort those families whose children have passed – never forgetting the impact of their lives and the joy they brought us.

HERE FOR YOU

Meet the Project Alive Team

Get to know the people behind our amazing team at Project Alive and the people that support our cause.

Our Team
group of young men at conference
boy smiling
New Hampshire
Stratham, NH
Aiden C.
boy smiling with toy
New Jersey
Howell, NJ
Aiden M.
boy laughing and clapping
New Jersey
Ocean, NJ
Aiden S.

FRIENDS AND FAMILIES

Helping Families Across the Country

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our Stories