Project Alive is a nonprofit corporation organized under the laws of the State of Tennessee and is qualified under section 501(c)(3) of the Internal Revenue Code with a tax ID of 46-4617970. Project Alive was formerly named Saving Case & Friends, Inc.
The mission of Project Alive is to cure Hunter Syndrome / Mucopolysaccharidosis II through research and advocacy.
Project Alive is a powerful voice for children and adults with Hunter Syndrome, bringing together families and advocates with researchers, industry, and regulators. Project Alive funds promising curative research, assists researchers and industry with designing research studies for our community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. Through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter Syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.