About Us

We are Project Alive

We exist to find and fund a cure for Hunter syndrome through research and advacocy. We are here to give a voice to the families and children touched by Hunter syndrome.

OUR PATH TO A CURE

Our Mission and Vision

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Providing Resources

From college apps to family support, we are here for you

Advocating for Families

We are ready to give you and your family the support you need

Fundraising for a Cure

Our fundraising efforts help aid the search for the cure

Supporting Research

With our grants and trails we aid in the research process

HUMBLE BEGINNINGS

A History of Research and Hope

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our History

OUR PROMISE TO THE COMMUNITY

We Are Here For You

We welcome and embrace those families who are newly diagnosed. We hold close those families who are journeying alongside us. And we support and comfort those families whose children have passed – never forgetting the impact of their lives and the joy they brought us.

Our Mission

HERE FOR YOU

Meet the Project Alive Team

Get to know the people behind our amazing team at Project Alive and the people that support our cause.

Our Team

Stratham, NH

Aiden C.

Howell, NJ

Aiden M.

Ocean, NJ

Aiden S.

FRIENDS AND FAMILIES

Helping Families Across the Country

Since 2011, we have fought to give children and their family the life and answers that they deserve. We have held true to this mission and continue to serve the community with every resource we have.

Our Stories

See What We've Been Up To

Updates and News

PRESS

Project Alive Welcomes Seven Members to the Scientific Advisory Board

Project Alive, a Hunter syndrome research and advocacy non-profit organization, announces the addition of the Scientific Advisory Board.

PRESS

Action for Aidan donates $200,000 to Project Alive

This nonprofit, based out of New Hampshire, has tirelessly worked to raise money for Hunter syndrome research over the last four years.

PRESS

Project Alive Welcomes New Board Member, Adam Haas

Project Alive, a non-profit organization dedicated to research and advocacy for MPS II, or Hunter syndrome, is pleased to announce the addition of Adam Haas to the Board of Directors.

PRESS

Project Alive Welcomes New Board Members and the Addition of Kyle Underwood as VP

Project Alive is thrilled to announce the new additions to the 2023 Board of Directors along with a new Vice President

PRESS

Project Alive Welcomes New Executive Director

The Project Alive Board is pleased to announce that Kristin Stockin has been hired as Executive Director of Project Alive